Walter is out of surgery, stable, and doing well. Disappointingly, the surgery itself did not bring about the outcome we had hoped. While the initial plan was for a full repair of Walter’s ToF, we have instead had to accept a temporary fix.
With a coronary artery passing over his pulmonary valve, the surgeon felt that the valve could not be accessed for replacement/repair and instead placed a shunt stabilizing the pressures in Walter’s heart so he will be able to safely return home without tet spells.
The fix, however, is temporary, with a goal of giving Walter more time to grow so that at 12 – 15 months of age he can receive a full repair. At that time, Walter will require a more complicated work around (likely eliminating his possibility for future valve replacements via catheter).
So our little warrior remains with a broken heart: valve, holes, and all. We can’t help but be disappointed. Still, with now multiple surgeries ahead, we are thankful that Wally can function better for the time being. As his parents, we have continually educated ourselves and tried to make the best decisions for Walter. We pray that God will continue to guide us as this journey continues.
In the coming days Walter will wake from his anesthesia, be taken off his ventilator to breath on his own, relearn how to eat, and slowly return to his baby routine. If all goes well, he will likely be in the hospital for about two weeks.